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Having fun, writing about the stuff I like

Epic Shit #3: Shit is easier to manage if it is expected

Oscar Foulkes March 30, 2016 Uncategorized 2 comments
I was comprehensively briefed in advance of the start of my course of radiotherapy. I knew what to expect, especially when side effects kicked in. There was a structure to the treatment, with a designated number of weekday visits to the hospital, weekly consultations with a doctor, and a clear sense of a beginning and an end. I had various medications for pain, spearheaded by morphine.

The side effects were horrible, but after each treatment I crossed off another day on my chart. I also had control over my pain medication.

It is now a little over three weeks since the end of my treatment. I can unequivocally say that the last two months represent probably the physically roughest period of my life, and in a way, the post-treatment period has been the worst. Yes, pain has abated to the point where I no longer need the morphine, but that doesn’t mean that I’m not experiencing a range of unpleasant side effects.

It’s one thing to sit out a process when you have the timeline in advance. The problem with post-treatment is that there is no schedule, no daily structure. No end date, nothing to cross off a list. I know I must be getting better, but oddly, it seems harder to manage than when I was getting worse.

epic_shitI was given this notebook by a friend, at the conclusion of a six-week course of radiotherapy to my throat. Radiotherapy is targeted at specific areas, so it’s theoretically an easier experience than chemotherapy. However, my throat became extremely painful, which affected eating and drinking, speech and more. I’m a better ‘writer’ on keyboard than with pen in hand, so here goes with a selection of things I would have written in the notebook if I could.

2 comments

Paul Martin - March 30, 2016

Hey Oscar,
Just a note to wish you well for your recovery. Clearly this is a hard road and thank you for sharing it. Hang in there!
Paul

Kathy - March 31, 2016

keep focused, as there is only one direction for you –FORWARD!!!
be thankful this is now and not 20yrs ago, as there has been huge progress in the medical field.
k

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